Post by sue on Oct 30, 2016 13:46:19 GMT -5
Good evening everybody things have been pretty hectic for me the past two days. So I went to my appointment Friday morning I thought it was for my oncologist to talk about the radiation but it was a three week check up with my chemo doctor dr. Esfahani pretty much the one who does everything for me. And so I went in to see him and just to clarify the one on my head and spine both increased 20% I have another smaller tumor below the one on the spine well that makes two near the spine. And I have 2 or 3 small ones straight down and in between the bridge of my nose between each eyes way down there in the brain . And so everyone knew I was starting to have headaches real bad after I quit my steroids 4 days ago. And I brought that up to him because those things work wonders. Well he wasn't too happy to hear that because I said something to the doctor when he gave me my prescription of the four milligram steroids and only a week worth of them then he was supposed to ween me down from 4, 3, 2 milligram but he just gave me the 4 and took me straight off he said no way that's not right no wonder you've been having headaches he said you have so much pressure and swelling in your brain I bet you're having headaches and puking again so he put me on the 2 milligram so I won't have to wean off so hard but I will have to take them for a few weeks which I'm fine with because they work better than any pain medication I have no absolutely no headaches when I'm on the steroids. So he did give me a prescription for that and said he's going to have a talking to mr. New guy haha so I got some relief and I can stop worrying about the headaches again. He is also getting mad it's taking so long for the radiation treatment since I already made the mask on Monday. So I am when I went in for my check up I got to go over to the other side of the regional Cancer Center and do an IV of steroid to hold me over till I get my prescription and I did my first IV of avastin which wasn't too bad and I didn't react bad at all to it! And I've been so worried about trying that stuff. at first I thought it was another chemo to go along with the first chemo ever had to do call temodar which I will be doing again that's all I can do for all the inoperable tumors brass set schedules and supposed to be doing radiation treatment a two-week radiation treatment Monday through Friday that was really hard though before so I know it's going to be hard again but. the first time around I had to do a whole month so I can only have so much more radiation on my head but this way they're going to be able to hit every spot I don't know why they didn't do this instead of sending me to gamma knife. then I noticed Friday they called five minutes before the office closed from the radiation department so I will find out what they say Monday hopefully ready to start the radiation radiation. the IV avastin is a 45 minute thing and it's only once a week or every two weeks and I thought I had to go in a couple times a week so that's cool to find out I guess it's going to really help my immune system with a chemo and help block the blood from flowing to the tumors so I got a better understanding of that I'm in it for the Long Haul! as soon as they gave me some steroids again I was just fine . my head was aching right after I stop taking them I knew something wasn't right because I noticed he because I noticed he because I noticed he didn't give me another prescription to to put me down on them like my dr. Esfahani always does that's why the headache came right back cuz they put me on the steroids till I start getting my treatment and he was also pissed he said if they don't get this radiation started with how serious my situation is he was going to flip out. that's all I know for now I will be calling first thing in the morning to the radiation department and keep you updated from there but I wanted to get a message out from yesterday's appointment I just been so busy. please continue all the love prayers and support for me and Miss Natalie all of you are the best thank you thank you thank you XO XO XO😍😊💞💗☝☺
