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Post by Toby on Sept 19, 2013 15:46:13 GMT -5
I have been reading the COPD magazine and noticed there were a few different options for patients with emphysema. One I read sounded good but I didn't qualify. It is a Aspire Clinical Study.
Another one was pulmonox. Have any of you heard about these trial studies?
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Post by merryfl on Sept 19, 2013 18:39:15 GMT -5
Clinical trials are how they try out experimental procedures and/or drugs and treatments. I looked into a few of them before my transplant, but none of them were being conducted near me. It can be difficult to qualify - they are usually looking for very specific patients - and you never know if you will get the treatment or be placed in the control group (which means you'll get a placebo or no treatment at all). Some are actual surgical procedures that they are trying to get approved by the FDA. Kinda risky, if you ask me.
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Post by Cherylmcc on Sept 20, 2013 9:54:02 GMT -5
I'd be afraid of an experimental procedure too.
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Post by Colleen-NC on Sept 26, 2013 3:42:48 GMT -5
also with the drug studies your usually taken off all your regular copd drugs and not allowed to take anything except the study drug.....so go ahead and investigate the studies if your interested, just make sure you ask a lot of questions & get all the details~sometime they even pay you, not mucch but something.
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Post by Colleen-NC on Sept 26, 2013 3:42:55 GMT -5
also with the drug studies your usually taken off all your regular copd drugs and not allowed to take anything except the study drug.....so go ahead and investigate the studies if your interested, just make sure you ask a lot of questions & get all the details~sometime they even pay you, not mucch but something.
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Post by Toby on Sept 30, 2013 16:36:48 GMT -5
I guess it didn't hurt to ask. I just got back from my pulm. Dr. and she told me they have had success with taking a certain antibiotic, low dose, for three months. She is going to try me after I get rid of this infection. My voice is practically nothing and it gets very frustrating getting anyone to hear me. I also get very tired and out of breath repeating. Isn't life grand!!
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Post by merryfl on Oct 1, 2013 8:40:43 GMT -5
Linda - this may sound like a strange question, but have you had your thyroid checked? When my levels get out of whack, my voice gets so soft and raspy that I can't talk on the phone. No one can hear me, even if I "yell". It doesn't hurt, and isn't red or anything. I went for weeks one time thinking I just had a throat infection. Turned out I needed my thyroid med adjusted. That's apparently a common symptom, but not one you ever hear about. Just a thought
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Post by Colleen-NC on Oct 3, 2013 7:53:44 GMT -5
Linda, I have read that the anti regime is a good one, hope it works well for you~~
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